What It’s Like to Live With EDS (Because Clearly People Still Don’t Know)

Recently, I found out that a friend who shares my illness, a friend who was instrumental in my pursuit of diagnosis and proper treatment and who is a publicly visible advocate for disabled people, was being stalked by someone who accused them of “faking” and “has a friend who is writing an article about it.”

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Health Update

There’s a lot going on in this body.

It’s amazing to me that so many people get to go through the first thirty, forty, fifty years of their lives without thinking much about their meatsuit. It doesn’t interrupt them. It doesn’t stop them from going places. It doesn’t rebel when they eat perfectly normal things. Amazing. If you have that, please take a moment to appreciate it.

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Self-Promotion for Indie Authors: Spam Not Included

So, you wrote a book and it’s out in the world now. You don’t have a Big 5 powerhouse shelling out thousands of dollars to market it, and so, in addition to your classy Author hat, you must wear many others; the ink-stained chapeau of the publisher, the bedazzled manic pixie dream bowler of the public personality, and finally, the logo-emblazoned baseball cap of the promoter.

Shoving your own work in front of people’s faces is hard.

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